Forty Years of Independent Living
EDITORS NOTE: This is from the Welcome speech given my Tim Wheat at the 2025 Deborah Cunningham Access Awards Dinner, Friday, July 25.
Disability Connection Midsouth was chartered in 1985 as Access All Areas and changed names officially in 1992 to Memphis Center for Independent Living. Forty years of Independence. That is who we are.
Since 1985 The Center has been a tower of empowerment for individuals with disabilities; even though we work out of a basement. From that basement we are deeply rooted in the principles of self-determination and community integration.
In May of 2008, New Mobility magazine profiled many of our Memphis consumers. The odd thing was they did not interview them in Memphis, they all lived in Denver. This Center bravely helped people like Devoe Mack, Willie Robinson and Darrell Williams move out of a Nursing Home in Tennessee to live in their own home in Colorado.
Often it was “Against Doctor’s Orders” and many families did not approve. But our Center fought for equal rights and responsibilities of citizens with disabilities. This includes challenging the systemic marginalization that has historically plagued our community—a marginalization fueled by bigotry, discrimination, poverty, isolation, dependency, and pity.
LaTonya Reeves was the first to use the Underground Railroad out of Memphis. LaTonya died two years ago; but she lived and worked in Denver for over 35 years. Back then, our state put people with disabilities in expensive nursing homes. The Center was determined to avoid that. LaTonya knew about nursing homes and said she would have died there. The average life-expectancy of someone in a nursing home today is less than 14 months.
Last year, Congressman Steve Cohen introduced the LaTonya Reeves Freedom Act to finally close the gap to allow people with disabilities to live in the community rather than being forced into expensive nursing homes or institutions. Tonight we are awarding Representative Cohen our lifetime achievement award.
Over a dozen people used the “Underground Railroad” to Colorado. Today DCM works to help people live independently in the community and we are currently working with nearly 800 people in the midsouth to remain in their own home and live independently.
Independence is our legacy. It was this Center that camped out in Governor Bredesen’s office for a record 78 days demanding Home and Community Services. If you read Governor Bredesen’s profile today, it will tell you he is the greatest proponent of nursing home alternatives and that he started the Tennessee CHOICES program. We here at Disability Connection know where those ideas came from. This Calendar year, with our new Transition Coordinator, Early Smith, we have made contact with over 250 nursing home residents and provided countless hours of transition services.
In 2002 This Center published more than 1,700 violations of the Fair Housing Act. These barriers kept people with disabilities from equally enjoying many new properties in the Memphis area. Today thousands of Units are accessible to our community that would not be without the work of this Center.
In 2012, with the Urban Institute we managed a survey grant to determine the frequency of disability discrimination in local rental units. And we continue to work on Fair Housing in our area. In the past five years we have documented nearly 4,000 housing issues that DCM has assisted with.
Before the 1990 Americans with Disabilities Act was law, The Center worked to make the Memphis community accepting and accessible. Deborah Cunningham led the way to make movie theaters in Memphis have reasonable access. This Center pioneered using Pro Se Complaints to enforce the ADA. Our consumers, without an attorney, sued restaurants, stores and even Greyhound Bus lines, and won.
The Center led the community in demanding equality in transportation and housing. Over the past 40 years, before the ADA and since, with our Pro Se complaints, peer advocates, DCM Blog, Personal Attendant Services, Barrier Free Memphis, Jingle Hop, and all the community partners, interested locals and all of you here tonight, I cannot imagine all the lives we have impacted this 40 years.
Memphis's journey with Independent Living began in 1982 when Easter Seals secured the first grant for IL. However, Easter Seals wasn't aligned with the core principles of independent living, particularly the crucial idea of consumer control (meaning people with disabilities leading).
Because of this mismatch, a group of former Easter Seals staff and consumers took action. They founded a new non-profit organization. What made this new organization different, and what continues to define it, is consumer-control. I am proud this concept is critical to the Center today forty years after our rebellious founding.
Thank you to each of you for being part of our Rebellious Future.
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