By Timothy Redd
Handicap, crippled, disabled, special needs, handicapable, differently-abled, and wheelchair bound are a few of the labels I have been defined by the course of my 37 years of life. One of my good friends called me handicapable and I let him. I’d appreciate if he did not.
I’ve seen people call themselves handicapped, wheelchair bound, and even crippled. All of this got me thinking how I would define myself. The ADA defines a person with a disability as a person who has a physical or mental impairment that substantially limits one or more major life activities.
First let me say the terms cripple and handicap are extremely offensive. The word cripple refers to a person unable to walk through illness or disability, it’s derived from two Old English words crypel and crÄ“opel and is recorded in Lindisfarne Gospels dating back to 950 AD Old English.
The term handicapped is a term that rose and fell with the 20th century. It arrived on the scene in the late 1800s as a way to talk about a range of disadvantages — one could be economically, socially or even morally handicapped by circumstances. The term originated at the racetrack, where a horse that was stronger, faster, or otherwise superior in some way could be given a handicap (a weight, a longer distance, a later start) to equalize the chances of the competitors. Initially, parties to such matches concurred to the conditions of the handicap by placing their hands into a cap and either pulling out or leaving cash stakes they had placed there. This conception of “hand in cap” is where the word first emanated from.
Handicap commenced to be applied to physical and mental differences in the early 1900's, when the fields of sociology and social work began visually examining people in terms of their place in society holistically. What had been visually perceived previously as individual failings or imperfections were recast as disadvantages with respect to larger contexts.
When I hear the term cripple I think about Tiny Tim in Charles Dicken’s, “A Christmas Carol,” a story for me that evokes pity. That is something I don’t need or want from people.
When I hear handicapped, I think of the standard parking sign. The man depicted in the image is all rigid and appears glued to the chair that in no way reflects me. I remember, when I was in school, I was grouped in with the students from the special education class at lunch because I used a wheelchair, even though I took regular courses.
We live in a society where there is a label for everyone and everything. What I find most aggravating is that we often are not seen as people but rather our disability. It can be extremely difficult to feel comfortable with yourself when you have to fight against the idea that something is wrong with you.
These days I feel I am fine because this is how I was born, and my disability is my norm. It has always been here. When it comes to how I identify, I identify as Tim, that’s my name. Yes I can’t walk and it does limit me in some ways but it’s not the complete summation of my total being. I am a man, son, brother, uncle, friend, and so much more. I wish people would see me for my humanity and not label or see me as a diagnosis. Fighting against that is exhausting sometimes. Labels are for clothes and I’m fine without any. How do you identify?
Disability Connection Midsouth builds on the blog from the Memphis Center for Independent Living to keep up with issues that impact the disability community and the midsouth. Please respond and add your voice to be a part of the discussion about important topics in the Memphis area and things that impact people with disabilities nationwide.
Wednesday, April 26, 2017
Wednesday, April 19, 2017
Arthritis management
Arthritis and tools you can use
By Timothy Redd
I attended a webinar that focused on reaching people with arthritis and offering strategies and tools for arthritis management. I learned quite a bit about arthritis. Did you know?
- About 1 in 4 (54 million) adults have arthritis.
- More than half of adults with arthritis (32 million) are of working aging (18-64 years).
- Nearly 60% of adults with arthritis are women
The term arthritis refers to more than 100 diseases and conditions affecting the joints. The most common type of arthritis is osteoarthritis. Other forms of arthritis are gout, lupus, and rheumatoid arthritis.
Symptoms of arthritis are pain, aching, stiffness, and swelling in or around the joints. Rheumatoid arthritis and lupus, can affect multiple organs and cause widespread symptoms. Arthritis commonly occurs with other chronic diseases. About half of US adults with heart disease or diabetes and one-third of people who are obese also have arthritis. Having arthritis and other chronic conditions can reduce quality of life and make disease management harder.
Everyday activities such as holding a cup, lifting a grocery bag, or climbing a flight of cares can all be limited by this condition.
One of the best thing recommendations for leading a better quality of life with this condition is physical activity. Physical activity can reduce pain and improve physical function by about 40%.
- One third of adults over age 45 with arthritis report anxiety or depression.
- About 3 in 10 find stooping, bending, or kneeling very difficult.
- More than 20% of adults with arthritis find it very difficult or cannot walk 3 blocks.
There are several arthritis management education programs that can be found on the arthritis foundation website. A great one is the walk with ease program, for this particular program there is a mobile app for iPhone and Android users that you can download or you can access the program online.
A wealth of information and support tools can also be found at the following websites:
If you would like to person to person support you can speak to by calling 1-844-571-HELP.
Tuesday, April 18, 2017
Mid-South ADAPT confronts Corker
Local ADAPT Chapter asks Senator to support for Disability Rights
Today Mid-South ADAPT confronted Tennessee Sen. Bob Corker asking him to cosponsor the Disability Integration Act (S. 910). Standing on a chair in the Crave Coffee Shop in Arlington Tennessee, a Mid-South ADAPT member caught the Senator at a rare public meeting and requested the Senator support people with disabilities civil right to live in the community.
“Elderly Americans and people with disabilities demand choice in long-term care,” said the activist standing above the crowd on a chair. “Tennessee more than most states needs the Disability Integration Act to avoid expensive institutions and nursing homes.”
Corker spoke briefly at the coffee shop outside of Memphis and answered some questions from the crowd that packed the small venue. The Senator stopped promptly at 9:AM. Mid-South ADAPT handed Disability Integration Act information to Senator Corker and he said that he would look at the information.
The Disability Integration Act (DIA) is civil rights legislation, introduced by Senator Schumer to address the fundamental issue that people who need Long Term Services and Supports (LTSS) are forced into institutions and losing their basic civil rights. The legislation (S. 910) builds on the 25 years of work that ADAPT has done to end the institutional bias and provide seniors and people with disabilities home and community-based services (HCBS) as an alternative to institutionalization. It is the next step in our national advocacy after securing the Community First Choice (CFC) option.
The legislation, when enacted, establishes new federal law - similar in structure to the ADA - that requires states and insurance providers that pay for LTSS to change their policies, provide community-based services first, and offer HCBS to people currently in institutions. DIA operates alongside CFC, but these two laws work very differently. CFC is an option which states can choose. Even though CFC provides money for states to support independent living, many states have not chosen CFC. DIA requires states and insurance providers that pay for LTSS to make real and meaningful changes that support the right of people with disabilities to live in freedom like every other American.
The proposed legislation establishes new federal law - structured like the ADA - that says “No public entity or LTSS insurance provider shall deny an individual with an LTSS disability who is eligible for institutional placement, or otherwise discriminate against that individual in the provision of, community-based long-term services and supports that enable the individual to live in the community and lead an independent life.”
DIA makes it illegal for a state and insurance providers that pay for LTSS to fail to provide HCBS by using waiting lists, screening people out, capping services, paying workers too little for services, or the other excuses that have been used to keep people with disabilities from living in freedom. DIA requires each state to offer community-based services and supports to any individual who is eligible to go into an institution. It also requires states to take active steps to make sure that there is enough affordable, accessible, integrated housing.
The legislation requires states and LTSS insurance providers to complete a self-evaluation to evaluate current services, policies, and practices that do not or may not meet the requirements of the Act and to make the necessary changes in services, policies, and practices required to comply with the law. Additionally, public entities are required to develop a transition plan using an extensive public participation process. Public entities that fail to comply with the law may face legal action for the Attorney General or may be sued directly. People who have been discriminated against may receive damages under the law.
Monday, April 17, 2017
STAC April Report
By Allison Donald, STAC Chair
The Specialized Transportation Committee (STAC) met April 14, 2017 at the Trolley Barn, 1370 Levee Road. During March’s STAC committee meeting Ms. Houston put in her notes that she would speak with Mr. John Lancaster about the use of MATA traveler for MATAplus riders. However, during April’s meeting no contact had been made. STAC will continue to monitor and follow up and ask for a meeting by the next scheduled meeting for the STAC committee.
As a committee, STAC agreed that there needs to be a clear distinction of what curb to curb service means and how that affects the riders traveling experience. Ms. Houston did acknowledge the need for better communication for riders and bus drivers and responsibilities as to what they can and can’t do when transporting passengers. Ms. Houston said that she is working on a script that will be added to the telephone prompt that will inform riders of the duties of the driver.
The last item on the agenda for April’s STAC meeting was the review and revision of the bylaws of the STAC committee. No major changes were made as to the structure of STAC and its operating procedures. However, there were some minor changes made to who will be recognized as a member of STAC versus who is recognized as a guest. There was also some changes suggested for the absentee policy.
Every issue that was addressed in this report is ongoing and we strive as a STAC committee to work to advise MATA not fix MATA, because only they can do so and that is why we invite ALL MATAplus riders to be a part of the process. Our next meeting will be May 5, 2017 at 2:00pm at the Trolley Barn. The address is 1370 Levee Road. If you would like more information contact Allison Donald at Allison@mcil.org or 901-726-6404
The Specialized Transportation Committee (STAC) met April 14, 2017 at the Trolley Barn, 1370 Levee Road. During March’s STAC committee meeting Ms. Houston put in her notes that she would speak with Mr. John Lancaster about the use of MATA traveler for MATAplus riders. However, during April’s meeting no contact had been made. STAC will continue to monitor and follow up and ask for a meeting by the next scheduled meeting for the STAC committee.
As a committee, STAC agreed that there needs to be a clear distinction of what curb to curb service means and how that affects the riders traveling experience. Ms. Houston did acknowledge the need for better communication for riders and bus drivers and responsibilities as to what they can and can’t do when transporting passengers. Ms. Houston said that she is working on a script that will be added to the telephone prompt that will inform riders of the duties of the driver.
The last item on the agenda for April’s STAC meeting was the review and revision of the bylaws of the STAC committee. No major changes were made as to the structure of STAC and its operating procedures. However, there were some minor changes made to who will be recognized as a member of STAC versus who is recognized as a guest. There was also some changes suggested for the absentee policy.

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