Thursday, June 8, 2017

NO THANKS!

By Louis Patrick

Louis Patrick
I got into one of "those" discussions recently. A fellow I was talking to on the telephone  began to harangue me about "those" lazy people who live in the projects. Even with opportunities aplenty and years of practice, I still have no idea of how to grapple with the prejudices and misconceptions behind such “discussions" in a positive manner. Instead, I tried to divert our chat to the disincentives which persons with disabilities face in trying to work, the loss of not only money benefits, but of medical insurance, of housing subsidies, the problems of trying to pay for attendant care. ‘Oh, no!’, the person said, ‘I wasn’t talking about handicapped people.’

He didn't use the words, but what he meant was that disabled persons are among the"deserving poor." That phrase is supposed to imply that while we are indeed poor, it's through no fault of our own, through no sin of sloth or laziness that we are so and that we thus "deserve" to be helped, to be supported (albeit poorly), to be taken care of.

Many of us buy into that image. Consider for a moment, however, whether that doesn't buy us into the reverse side of that coin: disabled people "deserve" to be poor.

There's no question that disabled people have "special" needs, that we need services beyond those other students require to get an education, that we have to stretch an already limited budget to buy equipment that allows us to get around or write or talk. The list could go on, of course. What's left out of a Social Security check to buy theater tickets with?

Louis Patrick
lf, however, we, as disabled people, continue to focus our hopes on charity and our efforts on obtaining “special" discounts and favors, we will only succeed in perpetuating our poverty and dependency. Our problem isn't that we don't have enough coupons in our our wallets. It's cash we're short of. Let’s stop wasting time begging and start asking that are responsible - to us - for spending millions of dollars for vocational rehabilitation why employment opportunities for persons with disabilities are still virtually nonexistent. Let's get real, honest to God, bloody tired of being poor!

With the proper "special" education and training and the proper "special" equipment we can function competitively in society. More importantly, we can become fully contributing citizens. We have an “inalienable” right to life, liberty and the pursuit of happiness,” a right to take responsibility for ourselves that we can't give away and no one can take from us.

We owe our loyalty to those who fight for equality and to those who “want the option of not having to say 'thank you'"; a quote attributed to John Hockenberry of National Public Radio. We have an obligation to one another to say "No thanks. I’d rather be able to pay my own way.”
Louis Patrick

Louis David Patrick, Jr.

Louis David Patrick, Jr. 1947 - 2017


Memphis, TN
Louis David Patrick, Jr. passed away on June 1 from

Louis Patrick
complications of adenocarcinoma. He was born in Memphis in 1947 to Louis Patrick Sr. and Daisy Patrick. Although Louis contracted polio in 1950 and lost the use of his legs, he was very independent until the last few months of his life. He attended the Shrine School, Sherwood Elementary, Overton High school and finally Memphis State University, where he met and married Sheila DeLozier in 1968 and earned his BA in 1975 with a major in History.

Although he worked at a number of jobs, the one that was closest to his heart was with the Center for Independent Living. On October 1, 1985, Louis, Deborah Cunningham, Fred Dinwiddie, Nigel Shapcott, and Michael Heinrich signed articles of incorporation for Access All Areas, the declaration of independence for MCIL as an organization run and controlled by people with disabilities. Until then, what was to become MCIL was part of West Tennessee Easter Seals, which was not controlled by and for people with disabilities. 


Louis described that life-changing experience this way: "I had been 'passing'--living and working outside the doubly segregated world of disability--since I had started public school at Sherwood Junior High in 9th grade. Had the CIL not been a very, very different way of serving people with disabilities, I would never have been interested in working there. Deborah Cunningham set me on the road to understanding the history and strength of the independent living movement."

After retiring from Fed Ex in 2003, Louis served on the Board of Directors for MCIL, several times as president. He chaired two committees for the MACCD, Memphis Advisory Council for Citizens with Disabilities: the Memphis Transportation Advisory Committee (MTAC) and the Housing Community Access Committee (HCA). He worked for the adoption by the City Council of a "visitability" ordinance to assure that new homes built in Memphis with public funding be more accessible to individuals using wheel chairs. He also worked on accessibility for the Liberty Bowl a Citizen's Pedestrian Advisory Council to improve sidewalks and other pedestrian facilities in Memphis, participated in a HUD investigation of fairness in renting apartments to individuals with disabilities, and submitted recommendations to the Overton Park Conservancy to improve accessibility in that park. Louis also worked on an Advisory Committee of Memphis' Engineering Department to form a "Pedestrian & Schools Safety Action Plan" and the Memphis Metropolitan Planning Organization's "Mobility Summit." Louis also worked with the University of Tennessee's Physical Therapy Department, allowing students to "practice" on himself, teaching them about his own experience. He also worked for many years with state representative Mike Kernell.

All these forms of advocacy and activism tell only a fraction of the story of who Louis Patrick was, however. He was fascinated with language and loved to discuss history and genealogy. His appreciation of beauty and joy of life were infectious. He was the epitome of the ideal gentleman, tender hearted and generous but firmly grounded in principles of justice and decency. He is survived by his aunt, Melrine Roleson, and a host of cousins and nieces and nephews who admired and loved him dearly.

Visitation will be held on Thursday, June 8 from 5 to 7 p.m. at the Forest Hill Cemetery mid-town at 1661 S. Elvis Presley Blvd. The memorial service will be at the same location on Friday at 2 p.m. Those who would like to make a contribution in lieu of flowers are encouraged to send donations to the Memphis Center for Independent Living at 1633 Madison Ave, 38104. The Center has also invited guests to attend a reception at that location following the service.

Louis Patrick at an MCIL event

 

Published in The Commercial Appeal on June 8, 2017

Wednesday, June 7, 2017

RIDIN' AIN'T WRONG - By Louis Patrick

RIDIN' AIN'T WRONG


By Louis Patrick
EDITOR’S NOTE: This article is from the Memphis Center for Independent Living’s Newsletter: The Declaration, Vol. 3 No. 1 January 1989
Louis Patrick
Every now and then I take my glasses off. Not very often mind you, not even to rest the bridge of my nose because I'm blind as a bat without them. The screen of my computer is about twenty inches from me as I write this, but if I stare over the top of my glasses the letters  are a complete blur. I even fall asleep wearing my glasses. If ever anyone was “confined” to glasses, I am.

Yet I don’t feel confined; quite the opposite. Glasses  not only give me nearly normal vision, they free me from worrying about what would otherwise be a serious and confining vision problem.

English, to My knowledge, has never tolerated the expression."confined to glasses.” Glasses have become quite fashionable lately even as contact lenses have become more comfortable and affordable. They've become "cool," what the Disability Rag calls "disability cool."  We do talk about a person being "confined to wheelchair," however. And wheelchairs aren't supposed to be cool.

What's the difference in the way we use language to talk about glasses and the way we talk about wheelchairs? Once upon a time there were no wheelchairs. There never has been a time, however, when there weren't some people who couldn't walk, talk, see or hear. Disability has always been - and always will be - an intimate and integral part the human condition. Being mortal doesn’t just mean that you’re going to die some day. It also means you have a physical body that’s subject to occasional, sometimes permanent , breakdowns.

Louis Patrick in the 1980's at an MCIL event
In those times before the wheelchair, or the wheel, people who couldn't walk didn't have any way of getting around unless someone carried them. They were virtually immobile, laying months, years on end in the same room. It's that mythic memory and image of interminable sameness, poverty, and complete dependence on others, that has become inextricably bound up with the idea of persons with mobility impairments and those of "confinement," being bound and "ridden." It's that image, associated with those words, which flashes instinctively into people's minds.

Then came the wheel. It moved goods, crops and animals, it moved people, able-bodied people. Then - finally - it moved people with mobility impairments. Today people who have trouble moving are able to move more and more easily, more and more independently. Now even people who don't have the physical ability to move more than their shoulders or heads can get around in specially equipped electric wheelchairs. And what happens? The public talks about such folks being "confined” to a wheelchair" as being confined by the vary tool which allows them unprecedented freedom and mobility. The wheelchair along with shoes, cars, boats, planes and trains are all tools for mobility. It's a cruel use of language to associate tools of freedom with tools of slavery.

These words stifle and denigrate the use of reason and technology to extend the abilities of disabled people. We can't take a Sunday stroll to Saturn but tools used to extend our "eyes" and "ears" have been there. Are we "confined" to our Reboks because they can't get us to Saturn without the use of other tools? What happens when we fail to accept the use of tools, for permanently, irrevocably lost abilities of our bodies?

Rheta Grimsely Johnson, a writer for The Commercial Appeal, wrote a story about a veteran who existed in the netherworld of rural Tennessee,, an amputee who was “confined to his porch."

Nonsense! He didn't have a wheelchair ramp. We've walked on the moon after we rode all but the last few feet. If we can  put somebody on the moon, we can get somebody off his porch! What are tools for? Not being able to “cure” disabilities doesn’t absolve us from using our brains.
Louis Patrick and Deborah Cunningham

These words help perpetuate a vicious rumor that wheelchairs are a drug even more powerfully addictive than heroin. If ever, even for a second, you sit in one you’ll never again stand and walk! You’ll “give up!” Haven’t you ever seen anyone get up from a wheelchair? Happens all the time. More and more folks are finding out that if you have a lot of trouble walking, you shouldn't beat your head against the wall trying to look normal when you can save all kinds of energy and live more safely and ignore independently riding in a wheelchair. If someone is having that much trouble walking, why doesn't he use a wheelchair? They might be somewhat inconvenient but this is true only because we don't design houses and our environment properly.

We spend billions of dollars a year to create and maintain our highway, waterway and airway systems. Ain't nothin' wrong with ridin'. It's a fine ol’ American tradition.

Monday, June 5, 2017

Surviving the Storm

Suggestions from the Independent Living Team

By now we hope everyone is up and going with power after the storm that blew through our city toppling utility poles, trees, damaging structures and cars leaving 188,000 Memphians without power, crippling several businesses. According to several local news authorities this was the third largest storm to hit our city. Here at MCIL we always want to provide you with news that you can use. After experiencing the uncomfortable conditions during the outage the staff at MCIL talked about preparedness. How prepared are you to survive a power outage or any other natural disasters?
 

Some weather events and local cutoffs will leave you stranded in your home. You may be physically trapped in your home or asked by authorities to stay at home. In some of these events you may not have power, water and gas. 

Following is a list of some things that you may need if you stay in your home:

  • Water to avoid dehydration and to assist in other medical needs
  • Extra batteries to power up battery operated devices
  • Battery Powered LED Flashlights and Lanterns – to avoid fire hazard of using candles.
  • Battery Powered Fans and heaters to provide heat or cooling
  • Printed list of emergency contacts in case you need to reach someone so you don’t have to rely on your phone battery.
  • First aid kit to remedy any small injuries that may occur
  • Cash for a hotel alternate shelter
  • Battery operated radio to hear the latest news and weather updates
  • Cooler, especially if you need to store food or medicine in a cool place.
  • Nonperishable food items, some things you can eat that do not need to be cooked.
  • If you have a pet have extra food and water for them.
  • If you decide or are instructed to evacuate your home many of the items listed above may be very valuable. But make a plan and take only what is reasonable. Include in the evacuation plan:
  • Identification in the event you become ill or are injured and need medical care
  • Your medication that is clearly marked – in case you need help taking medicine, you need refills, or in case first responders need to know what you are taking
Now that we have mentioned items that will comprise your survival kit, let’s consider a contingency plan that works for you. Here are some tips:


  • If you have a Personal Care Attendant (PCA), plan an alternate route to your home and create a back-up plan if the workers cannot get to you.
  • If you require oxygen and other supplies, you can notifying your neighborhood fire department. Read about Operation Rescue and fill out the form online: https://memphiscity.seamlessdocs.com/f/FSOperationRescueForm
  • You may want to speak to your health care provider about easy portable treatment aids or option in the event of an emergency.
  • Ask a trusted neighbor, relative, or friend so they will know to come and check on you especially if you need assistance with handling your daily needs and your PCA services. You may also want to have someone on reserve to take care of your pet if you need them to.

Shelby County residents currently enrolled in the Supplemental Nutrition Assistance Program (or SNAP, formerly known as Food Stamps) who lost power for 12 hours or more may be eligible for replacement benefits. To be eligible for the replacement benefits, the household must:
  • Be current SNAP recipients;
  • Have been without power for 12 hours; or
  • Have experienced other household misfortunes that have caused the loss of food.
SNAP recipients must request replacement benefits within 10 (ten) calendar days of experiencing food loss. Once approved, replacement benefits are issued to current recipients using their existing EBT card.  To request replacement benefits, current SNAP recipients can call the Family Assistance Service Center at 1-866-311-4287, or visit one of two Tennessee Department of Human Services Offices in Shelby County. Due to the extent of outages, wait times may be longer than usual.

North Branch Office
3230 Jackson Avenue
Memphis, TN 38122
Office Hours:  7:00 am - 4:30 pm

Welles Branch Office
3360 South Third Street
Memphis, TN 38109
Office Hours: 7:00 am – 4:30 pm


An affidavit must be signed as part of the eligibility process.
Shelby County residents that do not currently receive SNAP benefits can apply online at https://faonlineapp.dhs.tn.gov/ , or in person at the office locations listed above.
 

The Red Cross is also providing one time food vouchers for those who lost food and need assistance and are not currently receiving snap benefits. You may reach them at 901-726-1690.