25 Years of Demanding "REAL CHOICE NOW!" Remembering ADAPT's Historic 2000 Rally
By Tim Wheat
Twenty-five years ago today, on June 18, 2000, a powerful roar echoed through Washington D.C., as 800 disability rights activists converged near the U.S. Capitol. Led by the determined and unwavering voice of Justin Dart, this ADAPT rally ignited a quarter-century of relentless advocacy, demanding nothing less than "REAL CHOICE NOW!" and an end to the forced institutionalization of people with disabilities.
Dart, often called the "Father of the ADA," didn't mince words, bravely labeling the incarceration of people with disabilities in state hospitals, ICF/MRs, and nursing homes as "the hidden holocaust of 2000." His message to the President and Vice President was clear: "America demands REAL CHOICE now, MiCASSA now." And to the impassioned crowd, he fired up their resolve with a resounding, "Today we say no more bullshit." This wasn't just a rally; it was a declaration of war against systemic injustice.
The day began with a series of workshops, setting the stage for the collective action to come. Discussions ranged from ADAPT's rich history and procedures to critical topics like MiCASSA (Medicaid Community-Based Attendant Services and Supports Act parts of which are still evident in the LaTonya Reeves Freedom Act), defending the Americans with Disabilities Act (ADA) from attacks, implementing the landmark Olmstead decision, and effective negotiation strategies. Around noon, the energized contingent made their way to a plaza with the Capitol dome looming in the background.
As the crowd swelled, Mike Auberger warmed up the atmosphere with legendary ADAPT chants, building anticipation for the main event. At 2:00 PM, Linda Anthony officially welcomed ADAPT and other MiCASSA supporters to the "Voices and Faces of Institutionalization" Rally for MiCASSA.
The rally featured a diverse array of voices, all united by a common purpose. When Tim Westmorland from HCFA spoke, a symbolic white-bearded figure appeared, carrying an hourglass and scythe – a stark reminder that time was running out for those trapped in institutions. Andy Imperato, then president of the American Association of People with Disabilities, acknowledged ADAPT's crucial role, stating that "we would not get anything done in this town if it wasn't for ADAPT."
Perhaps the most poignant moment came from Kyle Glozier, who, wearing Justin Dart's hat, asked the gut-wrenching question, "What crime did I commit to be put into the crippled children's home?" He powerfully articulated how forced institutionalization shattered constitutional principles. Yet, his story also highlighted the transformative power of family, as he gratefully acknowledged his father's determination in rescuing him. "By the way, happy father's day dad," Kyle said, looking toward his father, "I love you." His words resonated deeply, reminding everyone of the personal toll of institutional bias and the hope found in community-based living.
Advocates from Georgia, Kansas, and the Washington D.C. area shared their personal experiences in nursing homes, further emphasizing the urgent national need for MiCASSA. Their testimonies painted a vivid picture of the lives impacted by the lack of choice and the critical importance of home and community-based services.
As the rally concluded, Mike Auberger underscored ADAPT's presence: "Washington must know that ADAPT is here." He passionately reminded advocates of their responsibility to "advocate for those brothers and sisters in nursing homes that cannot."
The rally then transformed into a powerful march down Pennsylvania Avenue to the White House. Passing iconic marble buildings like the Old Post Office, the Ronald Reagan Building, and the J. Edgar Hoover FBI Building, ADAPT carried its message directly to President Clinton and Vice President Gore: Americans nationwide were demanding an end to institutional bias.
Back at the hotel, ADAPT members gathered to plan their next moves. Mike recounted the very first ADAPT action in Washington D.C. back in 1984, inspiring newer members with the movement's long and impactful history. Stephanie Thomas perfectly encapsulated ADAPT's persistent progress with an analogy Bob Kafka often used: "It's like turning the Queen Mary," she said, "because it is such a huge project, it is hard to see the progress."
Twenty-five years on, the echoes of "REAL CHOICE NOW!" still reverberate. While significant progress has been made, the fight for full community integration and an end to institutional bias continues. Today, we honor the courage, tenacity, and vision of Justin Dart and all the ADAPT activists who, on that pivotal day in 2000, declared loudly and clearly that disability rights are human rights, and the time for change was, and still is, now.
What are your thoughts on the progress made in disability rights and community integration over the past 25 years?