From the Tennessee Disability Coalition
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Disability Connection Midsouth builds on the blog from the Memphis Center for Independent Living to keep up with issues that impact the disability community and the midsouth. Please respond and add your voice to be a part of the discussion about important topics in the Memphis area and things that impact people with disabilities nationwide.
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From the Department t of Justice:
The Civil Rights Division’s Disability Rights Section enforces the Americans with Disabilities Act (ADA), which prohibits discrimination in voting based on disability. The ADA applies to all aspects of voting, including voter registration, selection and accessibility of voting facilities, and the casting of ballots on Election Day or during early voting, whether in-person or absentee.
The Civil Rights Division’s Criminal Section enforces federal criminal statutes that prohibit voter intimidation and voter suppression based on race, color, national origin, or religion.
On Election Day, the Civil Rights Division will implement a comprehensive program to help ensure the right to vote that will include the following:
Back in 1998, Tommy Olmstead, Commissioner, Georgia Department of Human Resources, struggled to keep two women locked away in institutions even though the state’s professionals had found them more suited for the community. Georgia lost in the 11th US Circuit Court and was appealing the case to the US Supreme Court. Commissioner Olmstead argued that forcing citizens to live in institutions does not constitute discrimination because non-disabled people do not receive such services. No "discrimination" in service delivery can take place if no comparable services exist. The ADA gives no protection to individuals with disabilities, Georgia argued, who receive services designed only for people with disabilities.
Georgia was successful in getting over half the US States to support their appeal to the US Supreme Court by signing on to a friend-of-the-court brief that argued home and community services would become a “new entitlement." The amicus brief of the states also perversely contended that even though home and community services were less costly than expensive institutionalization, the ADA’s requirement for integration would be a financial burden to states and would be an “unfunded mandate” from the federal government impeding state sovereignty.
But ADAPT was clear. This was an issue of Civil Rights and ADAPT led the grassroots campaign to ensure the US Supreme Court did not overturn our right to live in the community. Twenty-six states signed onto the amicus brief supporting Georgia. ADAPT could have little direct impact on how each of the nine justices would rule, but the grass-roots group could change the minds of the states that supported Georgia.
One by one ADAPT struck in the US states that had signed on in solidarity with Georgia’s appeal. By April, when the Supreme Court heard the oral arguments in the case, the number of supporting states was down to 11. Although judges say they make decisions based on facts and issues of law, ADAPT and our allies had reduced the support for Georgia from over half of US states, to just a handful. The ADAPT campaign was truly a tremendous grass-roots success.
On March 9, 1999 Governor Gary Locke and the Attorney General of Washington wrote a letter to explain why they had removed their state from the Georgia amicus brief:
"The Governor and I have each affirmed our strong support for better services and choices for persons with disabilities. We do not want our signature on this amicus brief to call that commitment into doubt and create unnecessary fear and anxiety."
On June 22, 1999 the court released its decision in Olmstead. The ruling upheld the ADA “integration mandate” and called inappropriate institutionalization discrimination. ADAPT has called it our community’s “Brown v Board,” because it requires integration.
"Today's decision is a critical step in changing how and where people with disabilities receive services necessary for everyday life," said Mike Auberger, a national organizer with ADAPT, back on the day the Olmstead decision was announced. "It tells states that segregated services will no longer be tolerated. But our fight for REAL choice continues."
The fight for REAL choice has continued. The Attorney General who signed the letter removing the state of Washington from the Georgia amicus brief was Christine Gregoire. Now, thirteen years later: Governor Gregoire; the Governor who was the target of a grassroots campaign to protect the gains of Olmstead by not appealing MR v Dreyfus.
One very powerful aspect of ADAPT that is often hard to see is our consistency. People looking for immediate results and instant gratification may not understand the importance of the ADAPT action opposing Tommy Olmstead’s case against two women in Georgia. But the consistency of ADAPT’s fight for almost 30 years has amplified the power of our community. FREE OUR PEOPLE!
Editor’s Note: This is an unpublished and unfinished article from twenty years ago. Tim Wheat had just completed a cross-country bicycle trip visiting Centers for Independent Living and disability rights demonstrations. Tim Wheat has highlighted his current thinking in italics while the original text is not italicized.
September 23, 2002
September 23, 2022
By Tim Wheat
Twenty years ago I believe I had a lot to say about the direction of Independent Living, but I never finished or explained what I had found on my cross-country visit to other Centers for Independent Living. I re-examine some of my thoughts in the paragraphs below.
PHOTO: Tom Kirby at the Roswell Center for Independent Living in New Mexico. One of the Centers I visited on my six month bicycle adventure across the country.
Twenty years ago, I visited several Centers for Independent Living on a special assignment from MCIL’s Executive Director Deborah Cunningham. What I was attempting to point out in this opening paragraph was that I was able to see the Independent Living movement reflected in all parts of the disability community, and not unique to CILs.
Social workers spoke of client choice, person centered planning and independent living. Apartments, especially for older Americans, were adopting the moniker: Independent Living. Larger, older and better funded agencies switched from “case managers,” who may be involved in every aspect of a “case,” to only being the gatekeeper for a particular funding stream or program.
Twenty years ago I thought I was viewing the great success of the IL movement, but now, twenty years later and more than forty years since the beginning of federally funded CILs, I do not see the same success. In 2002 I saw Centers that were diligently working to include people with disabilities in a variety of ways, but what they did not do was to make themselves the center of Independent Living and faithfully promote and defend the Independent Living movement.
The historical components of the IL Center have become unnecessary because of the ADA and a change in social attitudes. Many CILs talk about the “four core services,” yet these services no longer are effective at meeting the needs of people with disabilities attempting to live independently. Please examine these core services when Title VII was written as compared to today.
Twenty years ago there were four core services: Information and referral, Independent Living skills training, peer counseling and advocacy. Now CILs have a fifth core service that can be described as transition. Transition from a nursing home or institution into the community and transition from school-age youth to an independent adulthood.
If you are not familiar with Independent Living, the idea of core services sounds pretty basic. The movement was progressive at the time and was similar to the Vocational Rehabilitation system that had developed. “Cases” moved, progressed and were tracked in a system that was centered on a file and a counselor, case worker or social worker.
The federal regulations that make up CILs and the reporting were before the 1990 Americans with Disabilities Act and lacked a lot of clarity. The “services” that IL Centers offer are broadly defined. There are a list of 17 services and yet the four core services are not the backbone of that list.
One problem with the long list is that it is never clear what a CILs is to do. Everything will fit under advocacy. I cannot see how each thing that we do is either systems advocacy, self advocacy or individual advocacy. The CIL working with people with disabilities to improve the system, build on disability rights and promote community inclusion all are system advocacy. Teaching an individual with a disability to navigate barriers because of their disability is self-advocacy and advocating for someone with a disability issue is individual advocacy. I believe CILs could do their work with advocacy as the only service category.
Teaching someone to ride the bus can be IL Skills Training, while providing transportation can be a service that directly interferes with a person’s independence. If someone learns to depend on the CIL for transportation, they are less independent. I believe Centers for Independent Living were originally designed to advocate and help sustain reliable accessible transportation for people with disabilities.
Many CILs got funding to provide transportation and the IL focus of the Centers changed to providers who talked about inclusion, yet profited from a segregated system.
Thirty-two years ago when the ADA was signed, public transportation was to become accessible and include people with disabilities. Paratransit systems were to provide transportation for people with disabilities who could not access the main-line public transportation system because of their disability.
The concept was that as fixed-route public transportation became accessible, paratransit would become unnecessary or less necessary. Now in 2022, paratransit in Memphis is as large as it was in 2002. MCIL has not only experienced push-back from local people with disabilities who do not wish to have an integrated public transit system, but we have dual advocacy of supporting accessibility of the fixed-route, while we promote the use of the segregated paratransit system.
EDITOR'S NOTE: Twenty years ago today was the public memorial service for the "Father of the ADA," Justin Dart. This piece was in the MCIL Journal archives.
By Tim Wheat, MCIL
(WASHINGTON DC July 26, 2002) A memorial and celebration of the life of Justin Dart was held today on the twelfth anniversary of the singing of the 1990 Americans with Disabilities Act.
The service was held at the New York Avenue Presbyterian Church in Washington DC and drew dignitaries and grassroots civil rights activists from around the world. The church was filled with signs from the Disability Rights movement and memento’s of Justin’s life.
“Hillary and I were just nuts about Justin,” said President Bill Clinton. “He stood by anybody big or small that he thought was the victim of arbitrary discrimination . . . I was profoundly honored to give him the Medal of Freedom.”
The highlight of the service was the reading of Justin Dart’s final message. His granddaughter, who Marca Bristo reported was the “light of his life,” read the powerful final communication of Justin.
“Justin Dart always identified himself as an ADAPT member. He believed in direct action,” said Bob Kafka the national organizer for ADAPT. “Justin, we will free the two million people in institutions, we will free our people.”
Much of the tribute was directed at Yoshiko Dart who had a long and special relationship to Justin. She and members of the Dart family sang the song “Sakura,” a song in Japanese.
“I will remember the boots, I will remember the hat, but most of all Yoshiko,” said Ralph Neas of People for the American Way, “I will remember you (and Justin) side by side.”
“He loved with premeditated passion,” said Joe Washington for the Dart family.
Following the Memorial Service there was a celebration at Union Station that featured music by the Dart family. Hundreds of people came to the gala where Senator Tom Harkin made a toast to Justin Dart.
“In the 16 years I knew Justin he never talked about yesterday,” said Sen. Harkin. “Justin Dart’s tomorrow is MiCASSA ... Here is to Justin Dart’s tomorrow.”
Washington, DC
FEBRUARY28,2022
All people deserve to be treated with dignity and respect and to have access to quality medical care. And in no case should a health care facility be causing a patient harm. The President believes we must improve the quality of our nursing homes so that seniors, people with disabilities, and others living in nursing homes get the reliable, high-quality care they deserve. That’s why he is announcing a set of reforms—developed by and implemented through the Department of Health and Human Services (HHS)—that will improve the safety and quality of nursing home care, hold nursing homes accountable for the care they provide, and make the quality of care and facility ownership more transparent so that potential residents and their loved ones can make informed decisions about care.
To do this, the reforms the President is announcing will ensure that:
The pandemic has highlighted the tragic impact of substandard conditions at nursing homes, which are home to many of our most at-risk community members. More than 1.4 million people live in over 15,500 Medicare- and Medicaid-certified nursing homes across the nation. In the past two years, more than 200,000 residents and staff in nursing homes have died from COVID-19—nearly a quarter of all COVID-19 deaths in the United States.
Despite the tens of billions of federal taxpayer dollars flowing to nursing homes each year, too
many continue to provide poor, sub-standard care that leads to avoidable resident harm. In fact, failure to comply with Federal guidelines at nursing homes is widespread. The Government Accountability Office found that, from 2013 to 2017, 82% of all inspected nursing homes had an infection prevention and control deficiency, including a lack of regular handwashing, that was identified through Medicare and Medicaid surveys.
Without decisive action now, these unacceptable conditions may get worse. Private equity firms have been buying up struggling nursing homes, and research shows that private equity- owned nursing homes tend to have significantly worse outcomes for residents. Private equity firms’ investment in nursing homes has ballooned from $5 billion in 2000 to more than $100 billion in 2018, with about 5% of all nursing homes now owned by private equity firms. Too often, the private equity model has put profits before people—a particularly dangerous model when it comes to the health and safety of vulnerable seniors and people with disabilities. Recent research has found that resident outcomes are significantly worse at private equity-owned nursing homes:
Research also suggests that, despite depriving residents of quality care, private equity- owned nursing homes actually led to an uptick in Medicare costs, too.
Today, the Biden-Harris Administration is announcing new steps by Department of Health & Human Services (HHS) through its Centers for Medicare & Medicaid Services (CMS), to improve the quality and safety of nursing homes, to protect vulnerable residents and the health care heroes who care for them, and to crack down on bad actors. The Administration is committed to these urgent actions as first steps toward fulfilling a broader commitment to ensure taxpayer dollars go toward the safe, adequate, and respectful care seniors and people with disabilities deserve—not to the pockets of predatory owners and operators who seek to maximize their profits at the expense of vulnerable residents’ health and safety.
Ensuring Taxpayer Dollars Support Nursing Homes That Provide Safe, Adequate, and Dignified Care
CMS is launching four new initiatives to ensure that residents get the quality care they need— and that taxpayers pay for. These initiatives will help ensure adequate staffing, dignity and safety in their accommodations, and quality care.
Enhancing Accountability and Oversight
Holding nursing homes accountable for their performance requires a robust compliance program—a program that has adequate funding to perform inspections and that imposes meaningful penalties when deficiencies are found. Federal taxpayer dollars should not flow to nursing homes that are unsafe.
Increasing Transparency
For too long, corporate owners and operators have not been held to account for poor nursing home performance. CMS will improve the public transparency of facility ownership and safeguard nursing home residents.
Creating Pathways to Good-paying Jobs with the Free and Fair Choice to Join a Union
Ensuring Pandemic and Emergency Preparedness in Nursing Homes
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